Everyone is with you Lewis, let's get behind ALL people with tics
Sometimes timing is everything....just off the back of the emotional performance by Lewis Capaldi at Glastonbury where he struggled to sing but was supported by the audience singing his song to him as his tics were so bad, we've just finished TS awareness month and a meeting of international research and clinical experts in TS meeting in Belgium.
The European Society for the Study of Tourette Syndrome (ESSTS)conference took place 7-9th June at the Royal Museum for Central Africa in Brussels. This was the first time it was held in Belgium with assistance from local organisers www.neuro-diverse.org and www.iktic.be
Doctors, researchers, scientists and numerous patient associations from different nations took part with 150 attendees from20 countries being present. The conference organisers were truly delighted by the record-breaking attendance with attendees from Australia, Canada, Iceland, Sweden, Norway, Germany, France, Italy, Greece and the Netherlands to name a few.
Another record broken was the number of abstract submissions this year as well as endorsements of the conference by the International Parkinson and Movement Disorder Society (MDS)and the International Association for Child and Adolescent Psychiatry and Allied Professions (IACAPAP). The conference was also graced with the presence of the wonderful Professor Mary Robertson with us on her birthday the 7th of June – also marked as Tourette Syndrome Awareness day!
A meeting of the patient association umbrella called Tics and Tourette Across the Globe (TTAG) https://ticsandtourette.org/ also took place as part of the conference event. The support associations discussed collaboration between doctors and patient associations to help support the creation of new associations in countries where none exists.
Although somewhat lacking in participation from Belgian healthcare professionals the conference was opened with a video message from Hilde Crevits who is a Belgian politician from Flanders and member of the Christian Democratic and Flemish party who is currently the Flemish minister of Economy, Innovation, Work, Social economy and Agriculture.
Amazing add-ons to the conference include a ‘training school’ for clinicians (physicians, psychologists, psychotherapists, nurses, medical students and other professionals) and behavioural therapy for tics training workshops in French and English to cater as many Belgian healthcare professionals as possible https://www.essts.org/
There was also patient participation as a British company presented a new technology that seems to be able to significantly reduce tics with brain stimulation via a wristband.
It feels like in Belgium we are very far behind in terms of awareness of Tourette Syndrome and tic disorders including their diagnosis and treatment. So this conference will leave a legacy for years to come which hopefully will highlight the advances that could be made to improve the lives of those with Tourette syndrome in Belgium as well as those around the world.
Everyone is with you Lewis and everyone can get behind everyone with Tourette Syndrome. 300,000 in the UK with TS, let's get behind ALL of them.